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Resource Center
Resource Center: General

American Association of Kidney Patients (AAKP)
The focus of the AAKP website is to inform patients and family members of the association and the programs that they offer to their members. It provides renal-specific information on patient education, conventions, and newsletters that assists patients in becoming active participants in planning and managing their disease state.
Phone: (813) 636-8100
Toll-free: (800) 749-2257
Email: info@aakp.org
Website: www.aakp.org

 

American Kidney Fund (AKF)
The AKF is a voluntary health organization providing direct financial assistance for the benefit of kidney patients supported by comprehensive educational programs, clinical research, and community service projects. It has helpful information on financial assistance programs, lifestyle ideas, and kidney disease facts.
Phone: (301) 881-3052
Toll-free: (800) 638-8299
Email: helpline@akfinc.org
Website: www.akfinc.org 

 

Cameron Siemers Life Grants
Are you between the ages of 18-28?  Have you been diagnosed with a chronic illness?  Do you have a dream that you need some financial help realizing?  If you are then check out the Life Grants that are available through the Carl Siemers Foundation for Hope.  This non-profit organization created these grants to instill hope in young adults who are not only going through the tough transition to adulthood, but have a life-threatening illness at the same time.  For further details go to their website.
Phone: (877) 774-7768
Website: www.cameronsiemers.org/life-grants.html

 

CaringBridge
CaringBridge offers free, easy-to-create web sites that help connect friends and family when they need it most.
Phone: (651) 452-7940
Website: www.caringbridge.org

 

FACT SHEET: How Your Kidneys Work (National Kidney Foundation)

 

HealthWell Foundation
The HealthWell Foundation(r) is a 501(c)(3) non-profit, charitable organization that helps individuals afford prescription medications they are taking for specific illnesses. The Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs, including: Prescription drug coinsurance, co-payments, and deductibles, health insurance premiums, and other selected out-of-pocket health care costs.
Toll-free: (800) 675-8416
Email: info@healthwellfoundation.org
Website: www.healthwellfoundation.org

 

Kidney Options
An educational website supported by Fresenius Medical Care North America for those with kidney disease and their healthcare professionals.  It provides information aimed at empowering patients with the knowledge they need to make informed decisions about their healthcare. It offers a free Kidney Options package with information patients need to know about kidney disease.
Toll-free: (866) 543-6391
Email: kidneyoptions@fmc-na.com
Website: www.kidneyoptions.com  

 

Kidney Patient Guide
The Kidney Patient Guide is a renal website published in the United Kingdom. It includes information on the physical aspects of kidney failure, including how the kidneys function, what happens when they don't, the treatments available, and the emotional, social, and financial implications of kidney failure. There are also excellent animations for kidney transplants, hemodialysis, and peritoneal dialysis (PD).
Email: kpg@pobox.com 
Website: www.kidneypatientguide.org.uk  

 

Kidney School
Kidney School is an online educational feature containing a series of 20-minute interactive modules that encourage patients to take control of their own healthcare and set goals in a Personal Action Plan. It was created by the Life Options Rehabilitation Program (see entry below) as a tool to inspire, motivate, and empower kidney patients while educating them on their condition and treatments.
Toll-free: (800) 468-7777
Website: www.kidneyschool.org

 

Kidney and Urology Foundation of America
Kidney & Urology Foundation of America (KUFA) is a national, not-for-profit organization dedicated to helping people with kidney and urologic diseases and individuals waiting for organ and tissue transplants. The Kidney & Urology Foundation focuses on care and support of the patient, the concerns of those at risk, education for the community and medical professionals, methods of prevention, and improved treatment options.
Phone: (212) 629-9770
Toll-free: (800) 633-6628
Website: www.kidneyurology.org

 

National Kidney Foundation (NKF)
The NKF is a voluntary health organization that seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.
Phone: (212) 889-2210
Toll-free: (800) 622-9010
Email: info@kidney.org
Website: www.kidney.org
Website for D.C. area Affiliate: www.kidneywdc.org

 

NeedyMeds, Inc.
A list of programs to assist those who can't afford to purchase the medications they need. Explains how to get help from patient assistance programs that are provided by many different pharmaceutical manufacturers.
Phone: (215) 625-9609
Website: www.needymeds.com  

 

Nephrology Channel (NeC)
NeC is an educational and community-based website for patients, family members, and healthcare professionals to learn more about a variety of conditions related to kidney disease. The site features an MDLocator, which can help find nephrologists near you and teach you how to carefully choose a physician. It has good interactive features such as the live chat and alternative treatment and nephrology forums.
Website: www.nephrologychannel.com  

 

Renal Support Network (RSN)
The Renal Support Network (RSN) values people with kidney disease and helps them become self-sufficient through education, advocacy and employment resources. RSN is a nonprofit, patient-focused, patient-run organization established in 1993 to provide non-medical services to those affected by chronic kidney disease (CKD). RSN strives to help patients develop their personal coping skills, special talents, and employability by educating and empowering them (and their family members) to take control of the course and management of the disease. A vital role of RSN is to provide lawmakers and policymakers with the patients' perspective on the needs and capabilities of people with CKD. 
Phone: (818) 543-0896
Email: info@RSNhope.org

Website: www.RSNhope.org

 

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