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Resource Center
Resource Center: Pediatric

Camp Holiday Trails
Since 1973, Camp Holiday Trails has been committed to providing a positive camp experience for children with special medical needs and chronic illnesses and their families. Camp Holiday Trails is open to any child with special health needs within or outside the U.S. The majority of our Campers come from the Mid-Atlantic states. Our Campers have diverse diagnoses such as arthritis, asthma and other respiratory conditions, cancer, diabetes, epilepsy and other seizure disorders, heart disease, immunodeficiency-including HIV, kidney disease, obesity, organ transplants, urological disorders and more.
Phone: (434) 977-3781
Email: campisgood@campholidaytrals.org
Website: www.campholidaytrails.org

 

Camp Independence
Camp Independence provides a weeklong summer camp experience for children and adolescents diagnosed with kidney disease or a solid organ transplant.  It is a week of fun & excitement meeting new friends, and enjoying time with old ones. Camp Independence welcomes children & adolescents 6-18 years old who have been diagnosed with kidney disease, are on dialysis (hemo or PD), or have received a life-saving organ transplant (kidney, heart, liver, lung). Campers come from across Georgia & the Southeast to attend this special week. Typically campers are from Georgia, South Carolina & Alabama but other out-of-state campers are welcome (please call for details).
Phone: (770) 452-1539
Toll-free: (800) 633-2339
Email: tracy@kidneyga.org
Website: www.kidneyga.org/services/campind.htm

 

Children's Kidney Disease Support Group (CKDS)
Works to improve the lives of children suffering from kidney disease by providing both emotional and financial support, as well as educating parents and families of children diagnosed with kidney disease. It also hosts support group meetings for parents.
Phone: (661) 296-6452
Email: kidneykids@childrenskidneydisease.org
Website: www.childrenskidneydisease.org

 

FACT SHEET: Children with Kidney Disease: Tips for Parents (National Kidney Foundation)

 

FACT SHEET: Reflux Disorders in Children
(National Kidney Foundation)

 

FACT SHEET: When Bed-Wetting Becomes a Problem: A Guide for Parents and their Families (National Kidney Foundation)

 

FACT SHEET: Detecting Kidney and Urinary Tract Abnormalities before Birth (National Kidney Foundation)

 

KIDNEEDS
This site describes a fund dedicated to finding a cure for membranoproliferative glomerulonephritis type 2. Currently, KIDNEEDS is supporting the research efforts of four scientists worldwide.
Email: kidneedsMPGN@yahoo.com
Website: www.medicine.uiowa.edu/kidneeds  

 

Kidney Advocacy
The Kidney Advocate is an informative site focusing on helping families affected by kidney disease. This site contains information to help plan your child's future and links to other valuable websites.
Email: yettapearl@comcast.net 
Website: www.kidneyadvocacy.50megs.com

 

KidsHealth
KidsHealth is the largest and most-visited site on the Web providing doctor-approved health information about children from before birth through adolescence. Created by The Nemours Foundation's Center for Children's Health Media, the award-winning KidsHealth provides families with accurate, up-to-date, and jargon-free health information they can use.
Website: www.kidshealth.org

 

NephKids Kidney Disease Support Group
A group of concerned families, patients and medical caregivers sharing information and experiences with the purpose of helping children and adolescents with kidney disease.
Email: eshirley_5@yahoo.com
Website: cnserver0.nkf.med.ualberta.ca/nephkids

 

Starlight Starbright Children's Foundation
A website that provides chronically ill teens opportunities to learn more about CKD and other chronic illnesses, chat, and blog with other teens from all over the world.
Website: kidneydisease.starlightprograms.org

 

World Kidney Fund
The World Kidney Fund was established as an international fund by the National Kidney Foundation Singapore to help kidney patients in developing countries who have little or no access to renal healthcare facilities. Through this fund, training programs are developed to empower non-profit kidney organizations to establish sustainable life-saving kidney healthcare programs. The World Kidney Fund also aims to raise global awareness about kidney disease and transplantation issues, as well as educate the international public on kidney disease preventive methods.
Email: wkf@nkfs.org
Website: www.worldkidneyfund.org

 

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